Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-04-23-Speech-4-305"

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"en.20090423.58.4-305"2
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". I welcome the proposed initiative to improve healthcare for people suffering from rare diseases. Due to the particular nature of diseases such as rare cancers, auto-immune diseases, toxic and infectious diseases, there is not enough expertise and resources available for them, yet nevertheless they affect 36 million EU citizens. Strengthening cooperation between specialists and research centres across Europe and information and service exchanges is a natural way for the European Union to assist its citizens. It is a direct way of providing benefits to you. This proposal urges Member States to set up new centres and training courses to maximise the potential of scientific resources on rare diseases and pool together existing research centres and disease information networks. I support these measures and encourage more Member State cooperation, which will allow greater mobility for patients and experts to serve you, the citizen."@en1
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