Local view for "http://purl.org/linkedpolitics/eu/plenary/2009-04-23-Speech-4-029"
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"en.20090423.3.4-029"2
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"Mr President, I should like to thank Mr Bowis for doing an excellent job in conducting these not-so-easy negotiations. One of the difficult issues has been help for patients with rare diseases – a topic which we will be discussing here in the latter part of the morning. We all want to give these patients the best treatment options available and, naturally, we see that close European cooperation in this respect will bring us huge benefits. However, it will be of no help whatsoever if we merely let patients travel across Europe, without empowering their countries of origin to control such travel, both medically and financially. If the text is adopted in its current form, it will give all patients suffering from a rare disease the option of travelling abroad and receiving any treatment whatsoever, which their country of origin then has to finance. However, how do we control spending and how do we ensure that patients do not receive inappropriate or excessive treatment? After all, they are at the mercy of their care providers. They also run the risk of coming into serious conflict with their countries of origin, which may refuse to pay up, under the excuse that the disease which they suffer from is not rare enough. We have not yet reached any agreement on how to identify that section of the patient population. We would vastly prefer a separate piece of legislation in this area so that we are able to help people with rare diseases in the optimal way possible."@en1
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